NEC - is a bowel disorder, where the bowel wall has been damaged or dies. It was described to us as being like a tear in his stomach.
After the period right after birth, which healthcare providers call the “honeymoon” period was over, we began our arduous journey toward coming home. In the beginning, we got the daunting, but joyful news that when Grant was four pounds, baring any other complications he would be coming home. Well, this was not to be. Less than one week after his birth (August 1, 2009), we received a call from his NICU nurse telling us that he had developed NEC. All I heard on the phone were the words, NEC, surgery, and Lebonheur. All the clinical stuff in between is a blurr to this day. I cried from the time I got the call until he finally arrived at Lebonheur. His father and I were there waiting on him and though I had seen him every day but one, since he was born, I could not believe my eyes. In just six days, my precious son had lost weight and my first words when I saw him were Lord my baby is drying up. To my surprise, when I called his name, he opened his eyes for a few seconds. This one little gesture gave me hope.